By Chris Haring

Lynda Bluestein, who fought to expand access to medical aid in dying in VT to out-of-state residents, traveled to use physician-assisted death in January.

Lynda Bluestein, a passionate advocate for medical aid in dying from nearby Bridgeport, Connecticut, chose to die utilizing Death with Dignity the morning of January 4, surrounded by loved ones in Vermont, marking the end of an impactful journey that reshaped the state’s end-of-life laws.

Connecticut offers limited end-of-life options in the face of a terminal diagnosis

As Mikaela Lefrak wrote for Vermont Public, Bluestein’s courageous activism, especially in the face of a terminal prognosis, paved the way for the 2023 amendment of Vermont’s assisted-death legislation known as Act 39. Diagnosed with ovarian and fallopian tube cancer, she sought access to aid in dying, which is not available in her home state. 

With no imminent legal movement on the horizon, Bluestein’s determination to have autonomy over her final days brought her to the neighboring state of Vermont. Under its law, accessing life-ending medication mandates a stringent process, including confirmation of a terminal diagnosis by two doctors, stating a life expectancy of six months or less.

Could Vermont’s aid-in-dying laws present a viable alternative?

In 2022, Bluestein and her doctor Diana Bernard initiated Vermont’s expansion of end-of-life options to those living outside the state when they legally challenged its residency requirement. During a Vermont Edition interview, Bluestein emphasized her desire to have control, stating, “I love my life [and] I don’t want to die, but I don’t want to suffer at the end of my life.”

Following a settlement in the landmark case in 2023, Bluestein became the first non-resident granted access to medical aid in dying in Vermont, prompting lawmakers to remove the residency requirement permanently when Gov. Phil Scott signed H.190 just two months later.

A right-to-die champion until the end

Dr. Barnard, recalling her conversations with Bluestein, highlighted her patient’s tenacity and steadfast belief that everyone should have access to this right in their own communities: “Lynda was a really special person,” Barnard said, adding “[H]er ability — not only to do what was right for her, but to want to make this option available for everybody — was really quite remarkable.”

Ultimately, Lynda Bluestein’s legacy extends beyond Death with Dignity, as she found ways through her final months to bring solace to those who have lost loved ones. Those selfless actions and contributions to the aid-in-dying movement leave an indelible mark, inspiring continued efforts for expanded choices nationwide.

For more information for out-of-state residents about accessing Death with Dignity in Vermont (and Oregon), please visit our website.

Read the full article below:

The woman who made Vermont’s medical aid in dying law more accessible just ended her life

By: Mikaela Lefrak
Published: January 4, 2024

Lynda Bluestein, a Connecticut resident and longtime advocate for medical aid in dying, passed away Thursday morning at a property in the Northeast Kingdom, surrounded by family. She took a legal prescription of a lethal medication to hasten her death.

Bluestein’s activism played a pivotal role in lawmakers’ decision last year to amend Vermont’s medical aid in dying legislation, known as Act 39.

After Bluestein received a diagnosis of ovarian cancer and fallopian tube cancer, she decided she wanted to be able to access medical aid in dying. It isn’t legal in Connecticut, so she turned to Vermont.

Under Vermont state law, a person wishing to access life-ending medication must follow strict procedures, including getting two doctors to confirm a terminal diagnosis of six months or less to live. Until last year, patients also had to be legal residents of Vermont.

In 2022, Bluestein and her doctor, Diana Barnard of Middlebury, sued Vermont over the law’s residency requirement. She discussed the lawsuit and her advocacy on Vermont Edition in 2022.

“I love my life, I don’t want to die, but I don’t want to suffer at the end of my life,” she said. “I’d like to choose how my final days are going to look, and that’s why I am seeking out this change in Vermont’s residency requirements.”

She reached a settlement with state officials the following year, becoming the first non-resident to be granted access to medical aid in dying in the Green Mountain State.

“Lynda was a really special person,” Barnard told Vermont Public. “And when it came to this issue, her ability — not only to do what was right for her, but to want to make this option available for everybody — was really quite remarkable.”

Barnard last spoke to her patient two days ago.

“The last thing she said to me was to make sure that people understand that while she’s so grateful to the access to our law in Vermont, and what we were able to help her achieve, that she really believes that everybody deserves to have this right in their own backyard,” Barnard said.

More from Brave Little State: The complexities of medical aid in dying in Vermont

Vermont is one of 10 states and the District of Columbia where medical aid in dying is legal.

Bluestein and Barnard’s lawsuit prompted lawmakers to permanently remove the residency requirement from the law. In May 2023, Vermont became the first state in the country to officially allow non-residents to access medical aid in dying. (Oregon is also no longer enforcing its residency requirement.)

Barnard is aware of other out-of-state patients who accessed and used life-ending medication in Vermont prior to Bluestein’s death on Thursday.

She and other Vermont doctors who are willing to prescribe for medical aid in dying have fielded an increase in requests for care from out-of-staters since the law was amended.

A hotline for people seeking more information on medical aid in dying in Vermont has seen a “quadrupling” of calls, according to Betsy Walkerman, the president of Patient Choices Vermont, which operates the hotline.

Walkerman said Bluestein’s legacy will live on in Vermont.

“She was a force in so many ways,” Walkerman said. “I have the highest appreciation and respect for her advocacy and her strength.”